"Is this human-subjects research?": Considering ethics of data science and AI (artificial Intelligence)

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This symposium will bring together experts from a wide range of fields to discuss and examine the ethical, legal, and social issues of electronic information and communication technology which is developing as a science that handles data derived from humans. 

With the development and diffusion of electronic information and communication technology in society, various human-derived data is becoming to be obtained by various methods besides conventional questionnaire surveys. For example, we can acquire and analyze traces of communication on the Internet such as social networking services (SNS), and with the development and spread of the Internet of Things (IoT), also obtaine data on behavior, and physical and psychological states directly from people. 

On the other hand, the broad types of utilization of medical data in society are being promoted for the treatment and care of lifestyle-related diseases and diseases having a genetic basis as well as for reduction of medical cost in whole society. If such data will be utilized as learning data for so-called AI(Artificial Intelligence), they are expected to served for doctors' diagnostic support and citizens' self-medication.

However, it is well known that there are widespread legal, ethical, and social problems in the acquisition, storage, and utilization of such human-derived data. Research on humans in the field of medical biology is concerned about direct physical and mental invasion, and its ethics and regulations have been steadily improved since the Nuremberg Code. Also, in research in the humanities and social sciences such as psychology, sociology, history (oral history), and cultural anthropology, the problems of psychological and social harm due to improper handling of human-derived data have been disputed about and concerned. It has also been known that legal measures such as the Personal Information Protection Law and the Copyright Law cannot sufficiently protect the research subjects and related parties. It has also been concerned that if the research ethics of medical biology and psychology are strictly applied, it may be difficult to carry out social science research.

This may show that it is inappropriate to simply divert and apply regulations in fields with strict regulations and research ethics to other types of reserch in the other fields which are differed in the sort and degree of harms and in the research methodology from the former fields, and, on the other hand,that researches in the latter fields without consideration for ELSI might bring other types of harms or offences to subjects and have an unexpected adverse sffect on society which exceeds the benefits the same subjects or society might receive. Such research without consideration of ELSI may lose the trust of the research subjects and the public, and as a result, it may hinder the acquisition and securing of research resources from wider society and make it impossible to carry out research. Thus, consideration of ELSI in research is also indispensable for realizing sound research, building and maintaining widespread public trust in the research field, and creating a sustainable and healthy research environment.

In light of the above situation, this symposium will consider the current ELSI and education of wider range of human-subject research and research on data derived from humans in the field of electronic information and communication technology. In addition to the instructors in the "Kokoro-e" section of the MDASH program (Approved Program for Mathematics, Data sicence and AI Smart Higher Education) of Open Univerisy of Japan(OUJ), we welcome reseachers in ethics and law related to the utilization of medical data and Internet research ethics. We comprehensively consider and discuss wider range of problems on this are with them.



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  • Date: 08 Mar 2022
  • Time: 09:20 AM to 12:00 PM
  • All times are (GMT+09:00) Japan
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  • Kyoto University
  • Kyoto, Japan, Kyoto
  • Japan

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  • Co-sponsored by Social Implications of Technology and Information Ethics, IEICE, Japan